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Live In Film's Paul J Lanes Nephew Ricky who has just turned 18 is dealing with skull based and brainstem chordoma (a rare, slow-growing cancer that originates in the bones of the skull base or spine, specifically from remnants of the notochord)

 

He is currently being cared for at Kings College Hospital in London and has been there for 9 months battling through many types of treatment. We are incredibly grateful for the Doctors, Nurses & Staff commitment to bring him through this.

Ricky's primary form of connecting to the outside world is watching entertainment from a small tablet device which sits just above his head from a lying position.He also communicates from this device via a VOCA voice output communication aid as he is unable to speak because of a tracheostomy tube.

Ricky is currently being cared for at Kings College Hospital in London and has been there for 9 months battling through many types of treatment. We are incredibly grateful for the Doctors, Nurses & Staff commitment to bring him through this.

Ricky's primary form of connecting to the outside world is watching entertainment from a small tablet device which sits just above his head from a lying position.He also communicates from this device via a VOCA voice output communication aid as he is unable to speak because of a tracheostomy tube.

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As a filmmaker and film director, I wish to bring cinema experiences to his bedside to stimulate his restricted life. A portable device which acts as a mini cinema for him and other patients in hospitals and hospices going forward.

Although I realise virtual reality goggles are serving well within the care system, a good percentage of patients find it very difficult to use them and Ricky is one of them as he has little strength in his neck.

There are 2 extra layers of high importance, the first being the internal room shared experience of family members alongside patients when visiting and the second being an experience of an exciting concept my company is exploring: a live interactive shared experience designed to connect patients with the outside world when their main carer wishes to share activities with them.

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Imagine a scenario where a patient can still participate in everyday experiences like fishing, attending football matches, concerts and even going shopping, all through the eyes of their carer.

 

To facilitate this, we are proactively trialing the technology of a dual camera extended to one's personal phone creating a split

 

screen for the live interaction known as the POV Heart Cam.

This allows the patient to simultaneously see the point of view of the main carer as they demonstrate an activity, along with the carer's face, fostering a sense of presence and shared engagement. We also see the possibility of ways to create other senses when watching the mobile cinema screen for example small fans creating a breeze or even a wind through the hair experience if a roller-coaster ride was being shared with the patient.

Ricky and both of his parents Andy and Emma wish to be a part of this new journey exploring the reality of bringing more stimuli in facing this fierce disease.

 

As we design and build the first mobile unit with existing technology, we shall experiment lightly with Ricky's interactions and we update you on our progress frequently.

 

The units will be known as The Micro Ciné Unit. (The MC Unit) E.g The screen, surround sound headphones for privacy. The external speakers for VOCA communication speech, the two way visual / audible enhanced external experiences.

 

E.g The screen, surround sound headphones for privacy. The external speakers for VOCA communication speech, the two way visual / audible enhanced external experiences.

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To support Ricky and the technology expansion and funding of the Micro Ciné Unit & POV Heart Cam, please click on the Go Fund Me logo.

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